Thursday, January 27, 2011

Do you know Tim?

Felt stories are a great way to aid in language development for all children not just children who have language delays.  I've used them before while teaching preschool.  We would use felt board stories as resourse to have children respond expressively (through talking) and receptively (through understanding of language).

I found GlitterfulStories while searching on etsy.  I ended up buying a felt story to give to Chris' autism teacher and am offering the same one as a giveaway.  The song "Tiny Tim"  is a simple song that I've used while teaching preschool.  This is an adorable felt story.  The quality is amazing and I will buy here again for my kids' teachers. 
This giveaway will end one week on Friday February 4th.  In order to win it you need to do one thing, leave a comment on this page.  To get another entry, follow me on facebook, a third entry for following my blog.  Following me on twitter will get you a fouth entry.  Don't forget to tweet about the giveaway as well!

Tuesday, January 25, 2011

And the Winner is

Lucky Number 1!  I'm going to be sending it out to you as soon as it stops snowing here.

Sunday, January 23, 2011

25 Things that Make Special Needs Parenting Easier

Thank you to Love That Max for letting me borrow this!  Also, don't forget to sign up for the giveaway that ends tomorrow! 

1. Your child's smile.

2. Being unafraid to say "no." As in, "No, twice a week of speech therapy is not enough" and "No, I don't think my child can handle that" and "No, I am not Angelina Jolie, though I do bear a striking resemblance to her, I know."

3. Finding doctors who are good but also kind, supportive and non-jerk-like.

4. Trusting your gut.

5. Accepting that you are not a crappy parent if you don't do every single thing the therapists ask you to.

6. The kindness of strangers (but not the pity).

7. Peach Snapple. Or Diet Coke. Or the occasional glass of wine. Or whatever powers you through.

8. Silly time that cracks you both up and helps you remember although your child may have disabilities, he is not at all fun impaired.

9. Knowing that you are not alone. Blog, comment, post on a message board, join an e-loop, start a support group. There's major comfort in connecting.

10. Having at least one babysitter both you and your child are truly comfortable with.

11. Having a good cry as needed, then moving right along.

12. Takeout. Diapers and prescriptions by mail. Not ironing. Whatever you can do to have fewer to-dos.

13. Roping in all the therapists on a conference call at least once a year.

14. Believing—truly believing—that there is something wrong with the people who stare at your child, not your child. That mindshift alone will save you many hours of grief.

15. A looseleaf binder with Important Papers organized in whatever way makes sense to you. Yes, you will need a hole puncher. Bonus: They're good for getting out frustrations.

16. Time for yourself, out of the house. Repeat after me: This is not a luxury—it's a necessity.

17. Going with the flow. So your child won't leave home without his stack of 20 purple paper cups? OK, then! If it makes him comfortable and it won't get you arrested, do it.

18. Not looking too far into the future when your child is very young.

19. The passage of time. Few things give you better perspective.

20. Having a handy catchphrase you can use when people ask questions that unsettle you. Person: "Is he talking yet?" You: "Yes, in his own way!"

21. Making playdates with other kids who have special needs. Good for the kids, good for you.

22. Asking other parents and experts advice for resources and things—the adapted chair for the dining room table, shoes, apps, whatever—that will improve the quality of your child's life, and therefore yours as well. Also, asking therapists to adapt things in your life (like the phone) so your child can better use them.

23. Your child's kiss.

24. Hope.

25. You tell me.

Friday, January 21, 2011

International day of Acceptance-a day late

Today, January 20th is International Day of Acceptance.  It is a day to promote differenting-abilities acceptance and understanding.  To mark this day I'm going to share a movie and make promises to my children (and children everywhere).

On this day (after) International Day of Acceptance I am asking that we all support each other no matter what the differenting-ability our children may have.  I ask that we celebrate our children's gains and chear them on as they work to make those gains.

We should not only be supporting our kiddies but supporting each other.  Sometimes moms or dads of differenting-abled kids need some loving as well.  Why not ask "What can I do to help?" instead of complaining if their house is a big neglected?  Why not show up with a home cooked meal?  You can lend an ear as a mom or dad vents/cries/complains about what is going on.  And most importantly not judge.

Please don't forget to enter the giveaway for the book "Don't Call Me Disabled" by Pat Thomas!  The deadline is Monday!

Wednesday, January 19, 2011

Looking for a few good writers

This blog is a newborn and in order to get more readers I'm asking for a few people to guest post.

As of now we are also looking to gain publicity in the 16p11.2 duplication and more awareness for what it is and how to treat it.  The SimmonsVIPconnect site and a group of us are trying to plan a conference for the syndrome and make it more public.  Not many people have heard of it and we're asking for simple things, a name and not a bunch of numbers and letters.  We are also asking to have service providers actually know what this is and how to treat it.

Also, don't forget to sign up for our giveaway that was posted on Monday!

Tuesday, January 18, 2011

The squeeky wheel

  Don't be afraid to speak up if you have a question with a service provider or doctor.  Sometimes it takes calling someone and asking a question if you are puzzled.  Today we got a phone call from the place doing Chris' genetic syndrome and while I was talking to her about the study things I asked if she could make a recomendation about a good developmental pediatrician.  She did one better and contacted the head of the study who is from Columbia University.  Looks like we will be headed there in less than 6 weeks!

Don't be afraid to speak up and show your displeasure.  We went to a new developmental pediatrician and his recomendations were way off base and upon recieving our report from him I disagreed with most of it.  I called up and talkedto the medical records department today who understood what I was talking about.  It can be frustrating but it was needed. 

We've had issues with the school district and have made countless phone calls, letters, and a call to the state to have it resolved.  I may have been labeled the difficult parent for this year but in the end I got what was needed for my boys.  Don't be afraid to advocate for your child if you feel it is necessary!
Don't forget to sign up for the giveaway of the book "Don't Call me Disabled" that was posted yesterday. 

Monday, January 17, 2011

Book Review: All About My Brother

I had a project to do this past spring for a class I had in diversity in language arts where I had to review children's books.  After receiving Chris' autism diagnosis shortly before this assignment I looked for a book to review that was about autism and how to explain what it was to children.  Along came "All About My Brother" by Sarah Peralta.

"All About My Brother" is a written by an eight year old child who happens to have a  brother with autism.  It uses technical but kid friendly terms when explaining what autism is, what it can look like, and how autism may affect sibling relationships.  I recommend this book to anyone who has a child who is autistic.

Now to launch the new Parent Warrior site...thanks to Genie Girl Graphics, I am doing my first of many giveaways.  In 7 days from now someone can be the lucky winner of the book "Don't Call me Special: A first look at disability" by Pat Thomas.  I will chose the lucky winner with  To win this book you must first follow this blog.  For a second entry you can follow me on twitter .  For a third entry, send me a link  at for your blog to include in mine.  After all, we are ALL here to support each other!  For yet another entry, grab my button to the left and put it on your blog. Leave me a separate comment for each extra entry you do.